We understand how challenging it can be for parents of CAH children, who need to manage so many things from routine blood work, dose adjustments, effects of dose changes on their kids, times of illness, times of stress, adrenal crisis, hospital stays, sleep affected by dosing and so much more. So, we want to contribute as much help as we can possibly, in every way.
We have created an Emergency Awareness Handout Pack that includes a handout for Schools and a bonus handout for parents. The School Handout contains the Emergency Handout and all you need to do is fill out the details of your child, and give it to the school. The bonus Parents Handout is to help you prepare for school, offering you suggestions on how to approach a school, how to educate teachers and how to keep this discussion ongoing in order to keep your child safe. We hope this makes a difference to your life, and we will offer you many more along the way.
We understand how challenging it can be for parents of CAH children, who need to manage so many things.
In the first of a series of handouts for parents, we have created an Emergency Awareness Handout Pack that includes a handout for Schools and a bonus handout for parents.
by C. Y. Hsu and Scott A. Rivkees MD
CAH is an inherited disorder of the adrenal glands. Its effects can be wide-ranging and serious-from problems of ambiguous genitalia in baby girls; to problems with growth and physical development; to problems with infertility and hormone imbalance.
by Peter C Hindmarsh and Kathy Geertsma
Congenital Adrenal Hyperplasia: A Comprehensive Guide addresses how hydrocortisone works, what can go wrong, and how to correct it, also explaining why the timing of doses and measurement of cortisol from a dose is extremely important.
We have created a Facebook page called Omkar's Journey with Congenital Adrenal Hyperplasia to chronicle all possible events and scenarios in the life of a child with CAH, with a view to let new parents know what to expect.
Mobirise themes are based on Bootstrap 3 and Bootstrap 4
Publish your website to a local drive, FTP or host on Amazon S3, Github.
The Congenital Adrenal Hyperplasia Support India group on Facebook is a closed group and is for discussion and sharing of information relevant to Congenital Adrenal Hyperplasia only. This is a safe place for parents whose children have CAH to exchange and seek information that might help them deal with the problem. Note that posts which are not relevant to CAH and which are advertisements for sales of products, services or groups will be deleted and the person posting the message will be removed from the group without notice. If you wish to join this group: