Our mission is to spread the awareness of the condition called Congenital Adrenal Hyperplasia, which is so rare and so unknown, even in educated circles. It is our way to support parents of CAH children who go through so many challenges in bringing up a child with CAH, even something as simple as admission to schools, which many parents take for granted with normal children.
If you wish to get in touch with us, please send an email to firstname.lastname@example.org.
When a 15-day-old baby, who had a bout of mild diarrhoea and vomiting became severely dehydrated, the parents, though worried, did not sense something could be seriously wrong. However, they were shocked when their doctor diagnosed the baby with Congenital Adrenal Hyperplasia (CAH).
CAH is an inherited disorder that affects the adrenal glands where the glands cannot produce cortisol and aldosterone, and instead produce an unwanted excess amount of androgens.
Here’s an incredible story of a mum who has perhaps been subjected to numerous judgements, opinions on her choices and decisions taken in life. It has surely not made her weak but every step has made her amazingly strong. Deepa Kannan of Yogasopanam wellness is a yoga teacher-entrepreneur and a mum to a child who has a very rare health condition. Deepa is someone who is married for the second time and with Mums and Stories she shares her dreams, her life and on parenting her child- Omkar.
Cares Foundation is a Not for profit organisation in New Jersey which was set up for the reserach, education and support of Congenital Adrenal Hyperplasia. They have declared June as CAH awareness month and to increase the awareness of CAH, each day the Cares Foundation writes stories about someone who has the condition or who is working towards it. On June 24th, 2016, the Cares Foundation has written about Omkar. All the information shared by Omkar is to say that although he has CAH, he is so much more. There is a video as well.
We understand how challenging it can be for parents of CAH children, who need to manage so many things.
In the first of a series of handouts for parents, we have created an Emergency Awareness Handout Pack that includes a handout for Schools and a bonus handout for parents.
by C. Y. Hsu and Scott A. Rivkees MD
CAH is an inherited disorder of the adrenal glands. Its effects can be wide-ranging and serious-from problems of ambiguous genitalia in baby girls; to problems with growth and physical development; to problems with infertility and hormone imbalance.
by Peter C Hindmarsh and Kathy Geertsma
Congenital Adrenal Hyperplasia: A Comprehensive Guide addresses how hydrocortisone works, what can go wrong, and how to correct it, also explaining why the timing of doses and measurement of cortisol from a dose is extremely important.
We have created a Facebook page called Omkar's Journey with Congenital Adrenal Hyperplasia to chronicle all possible events and scenarios in the life of a child with CAH, with a view to let new parents know what to expect.
Mobirise themes are based on Bootstrap 3 and Bootstrap 4
Publish your website to a local drive, FTP or host on Amazon S3, Github.
The Congenital Adrenal Hyperplasia Support India group on Facebook is a closed group and is for discussion and sharing of information relevant to Congenital Adrenal Hyperplasia only. This is a safe place for parents whose children have CAH to exchange and seek information that might help them deal with the problem. Note that posts which are not relevant to CAH and which are advertisements for sales of products, services or groups will be deleted and the person posting the message will be removed from the group without notice. If you wish to join this group: